Three weeks ago today, we sat in yet another oncologist's office. This guy is the sarcoma specialist in Colorado. We decided it would be best to stay local for support and ease of any transition that may come. His offer? Chemotherapy to possibly shrink the tumors and provide some pain relief. He said if Rob did nothing he would have weeks to live. I am happy to say that Rob is laying next to me, in little to no pain (for the first time in about a year), and does not have an ounce of chemo in him.
Many have walked this journey together with us and seen bits and pieces, and frankly, no one but us three really know all that we've had to endure, but people are aware of all the things that we have tried to do to beat this cancer. Rob has been a walking science experiment, and he is by far the most courageous person I have ever known. After talking with a few sources, we decided to give cannabis oil a try. We felt we didn't have much to lose, and if anything it would help him with pain. It has done that and even more! For the first time in a year he has slept deeply and soundly with little pain. That alone makes this experiment a Godsend.
There are some side effects he's been dealing with. He has basically slept for the last three weeks since getting out of the hospital. There have been relatives and friends that have come to see him, and he doesn't really remember. The cannabis coupled with the prescription narcotics will occasionally affect his ability to have a straight and intelligible conversation (which, if you know Rob, is definitely not him). We are working with hospice to wean him off the narcotics since the cannabis oil has been way more effective at dealing with his pain (thank YOU JESUS!!) He is super hungry most of the time, so we have to make sure to keep the house stocked with good "munchy" food :)
I have a few things to say. I have believed that Rob is going to be healed since the beginning of this journey. There have been many ups and downs and times that I've been tempted to believe that it's not God's will to heal him, but I firmly believe that Rob has purposes in his heart and callings spoken over him that have not yet been fulfilled. I believe that God brought us together and gave us an amazing child to raise together. For the first time, I can see in the physical what I have believed in the spiritual. Please continue to lift us up and believe with us for his full mind, body, and soul restoration and recovery.
I want to keep you all updated and post as often as possible. With my little angel it becomes a big challenge, as she loves to play with my keyboard. However, I will do my best to post updates even if small. Much happens almost daily and many are wanting to know how Rob is doing.
Sara, this is Martha Grosscup. Remember me - my Dad was diagnosed with brain cancer (Glioblastoma Multiforme) last February. To encourage you, after a lot of prayer and crying out to God, his MRI results are showing no cancer cells. This is truly a miracle. His neurosurgeon said he has only seen this one other time in his entire career. He is continually amazed.
ReplyDeleteThe oncologist had told us from the beginning that she never sees glioblastoma tumors disappear completely. They are too embedded in the brain cells and chemo and radiation only slow down the growth but cannot kill the cancer. So keep the faith and take God's prognosis not man's. We continue to pray for Rob and your family.
YES!! That's incredible news. I'm so encouraged and so happy for you. I want to jump up and down for you! This is exactly what I have been praying for and believing from the beginning. I remember so clearly the day you all came over and prayed for Rob. That was powerful!
DeleteSara, It's wonderful to read your blog...but please know there's no pressure...whether you blog or not...still praying for you, Rob and Ari. Blessings, Peace and Love, Cheri
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